A Random Musing....

It is very peaceful as I sit here with my kitties. I am quite sure that if I leaned back in the recliner, I could clear my mind enough to go to sleep. I'm not ready for sleep yet though I am tired enough for it, but unfortunately it consumes enough of my time as it is. Due to my health conditions I have lost enough of my life to sleep since March, but it looks as if I may see a tiny ray of light at the end of the tunnel. The cortisol replacement medication should give me some relief from this ungodly fatigue that has made me the anti-life of the party. LOL I will be getting injections into my sacro-iliac joints to alleviate some of the lower extremity pain. I start those injections on Monday, and I must admit I am a little nervous about it. Maybe I need to be a little more realistic about the relief I will get, but who knows maybe they will work wonders for me. The medication change has worked for the numbness and tingling in my face, hands, and feet. I still get it, but it isn't nearly as bad as it was. So, I'll take any victory no matter how small, because after all, it is still a victory.

Lightbulb Moment........

So, I saw an endocrinologist 2 weeks ago for the tumor on my Pituitary gland, and he drew a TON of blood. He is a very nice doctor, about my age, and he took a lot of time talking to me, and my sister Kelly about what has been going on with me over the past few months. Yesterday, I had my follow-up to go over my lab work. He was going over my lab with me, and he asks me the question, "Have you ever had to take a HUGE amount of steroids for anything?" I said, "Yes I have. When I was 17yo I was diagnosed with Discoid Lupus and was given Plaquenil which gave me Steven Johnson's Syndrome which nearly killed me, and I was put in the hospital for about a month. I was put on super high doses of steroids at that time." He then nodded his head and told me that that explained my lab work completely. He then went on to say that those super high doses of steroids had basically destroyed my pituitary gland and it's ability to produce the supplemental hormones that my body needs like cortisol and my thyroid hormones. He told me that I have to take one more test next week to confirm it, but he wrote the replacement medication for me already. Cortisol basically controls your energy level. He says that is one reason that I feel the uncontrollable need to sleep all of the time, and why we cannot get my thyroid levels regulated. It is hard to look at that bottle of medication in the cabinet knowing that it could give me ENERGY, but I have to wait until next week. So wait I will. After all, I've been waiting for 23yrs......

Rainy Days and Mondays....

This rainy day IS a Monday. Wow, what a downer. I am definitely not defying gravity today. I had a doctor's appointment early this morning, so I had to get out in this slop. Thank goodness I had company in the form of my sister Kelly. We were both less  than enthusiastic to get out in the nasty weather, but we both had MD appointments. After that we had a couple of small errands to run, but it seemed like all either of us could do was yawn.

It is dark and gloomy outside, and the rain is getting harder. Zac just got home, and Louis is laying on my feet. I think I'll give in and take a small nap.......